News, info and tips for living with multiple sclerosis
It was 3:20 in the morning when my leg jolted me awake, zinging with pain. It ran down my shin and across the top of my foot. The leg then gave a spastic jerk, bending at the knee and rapidly pulling up toward my chest. Then it slowly lowered, but the pain continued for several more minutes. Repositioning my legs combined with mentally trying to relax finally ended the episode,…Continue Reading
After some stumbles out of the starting gate, an experimental treatment that’s in a group hoping to be the next big thing for people with multiple sclerosis (MS) is a step closer to U.S. Food and Drug Administration (FDA) approval. Tolebrutinib, developed by Sanofi, has been designated as a Breakthrough Therapy for the treatment of adults with non-relapsing secondary progressive MS (nrSPMS). The designation is intended to speed the development…Continue Reading
My thanks to my neighborhood supermarket and all of the other stores that still have real people at some of their check-out aisles. It’s a lot easier for folks like me, who have a handicap like multiple sclerosis (MS), when we don’t have to be our own check-out clerks. It’s one of the little things that make a big difference when you’re riding a mobility scooter, using crutches, or even…Continue Reading
I’ve been using electric mobility scooters for years, and more so as I’ve grown older and my multiple sclerosis (MS) has slowly progressed. So, when I read about a new scooter on the market designed for traveling, I was immediately interested. The same goes for a new, inexpensive, manual wheelchair recently developed. The new scooter is Pride Mobility’s Go-Go Carbon. It’s a very lightweight scooter designed for travel; just throw…Continue Reading
Telling your family and friends you have a disability can be tough. Telling your employer can be much tougher. When it comes to disclosing their disability, or requesting an accommodation, many people with multiple sclerosis (MS) worry that they’re damned if they do, but might be damned if they don’t. I’ve seen this problem from both sides. When I was first diagnosed with MS, I was working in the news…Continue Reading
A 10-minute injection or a two-hour infusion? Which would you prefer to treat your multiple sclerosis (MS)? That choice is now available, following the U.S. Food and Drug Administration’s approval of Ocrevus Zunovo in mid-September. The treatment combines Genentech’s very popular Ocrevus with ocrelizumab with a drug delivery system called Enhanze. Ocrevus, according to Genentech, has been used to treat more than 350,000 people with MS (PwMS) since it was…Continue Reading
My fingers are crossed. Again. IMPT-514, an experimental cell therapy produced by ImmPACT Bio, has been approved by the US Food and Drug Administration (FDA) for phase 1 multiple sclerosis (MS) trials. I hope this treatment might be the next big thing for people with MS, but I know from experience that’s far from certain. IMPT-514 is a bispecific chimeric antigen receptor T-cell (CAR-T) therapy, designed to ease MS symptoms…Continue Reading
Cheryl Hile is hard to catch up with. Hile is a marathon runner. When I first interviewed her, nearly eight years ago, she had just finished running a marathon in Cape Town, South Africa. It was the first race in her goal to run a marathon on each of the seven continents in the following 12 months. Goal accomplished! Hile followed that race with marathons in Buenos Aires, Honolulu, Antarctica,…Continue Reading
The author describes his struggles with fatigue, cognitive fog, and stress exacerbated by multiple sclerosis (MS) and his wife’s recent back surgery. He juggles various caregiving tasks, while battling severe fatigue. He discusses mixed results of the medication modafinil, used to alleviate MS fatigue, noting personal experiences and varying research findings on its effectiveness.
It’s been steamy 100 degrees (38c) in the Washington, DC area the past four days and most people are probably thinking about cooling, not COVID-19. But the SARS-CoV-2 virus appears to be on the upswing again and people with multiple sclerosis (MS) shouldn’t ignore it. The US Centers for Disease Control reports emergency room visits for treatment of virus symptoms were rising an average of about 23% a week at…Continue Reading